http://www.trisomy18.org/site/DocServer/S_1810_passed_by_House.pdf?docID=1041
Of course with this good news, I have spent much of my day thinking about my little Philip. Here he is, with a few new pics of little brother Cristian.
Sunday, September 28, 2008
New Law!!!
I was so excited today to open my email and find that a new law will soon be signed by President Bush. This new law will give parents who have received pre-natal diagnosis of Trisomy 13, 18, 21 (Down's) and other genetic syndromes access to information about their diagnosis and networks that could offer assistance and support. This is a BIG victory for families (like us) facing those difficult decisions. We were blessed to have doctors that (for the most part) supported us and gave us all the info they could. We also had friends and family that supported us and gave so much during our journey with Philip. I have been so amazed and saddened by the stories from other familes that were not so lucky. They had doctors and worse, friends and family, that were not supportive or helpful. They were given inaccurate information and made life altering decisions based on that bad info; having to live with the consequences. Hopefully this new law will insure that families are making decisions based on facts and not opinions. So they can be really comfortable with all the decisions they make regarding their little babies. Here is a link if you want to read more about the specifics.
http://www.trisomy18.org/site/DocServer/S_1810_passed_by_House.pdf?docID=1041
Of course with this good news, I have spent much of my day thinking about my little Philip. Here he is, with a few new pics of little brother Cristian.
http://www.trisomy18.org/site/DocServer/S_1810_passed_by_House.pdf?docID=1041
Of course with this good news, I have spent much of my day thinking about my little Philip. Here he is, with a few new pics of little brother Cristian.
Thursday, September 18, 2008
3 months old...
Look how cute I am in my 3-month pictures!
Not to sure about this whole sitting up thing.
I really prefer my back better, especially when I watch TV.
I was trying to tell mom I was so over the photoshoot, but she just kept snapping!
We took Cristian to Pappasitos for his 3 month birthday dinner last night. He didn't get to have any of the delicious food or margaritas, but he enjoyed sitting outside on the patio and watching the waterfall while mommy and daddy cleaned their plates. We even threw pennies into the fountain with wishes for both Cristian and Philip. It was fun. We haven't really had a whole lot of family time outside the house since Cristian was born, so this was such a treat. Carlos has taken to saying that everyday is Christmas at our house. Cristian is our daily gift that keeps on giving. We are amazed everyday as he takes in the world around him and continues to change and grow. We are so in awe of him.
Not to sure about this whole sitting up thing.
I really prefer my back better, especially when I watch TV.
I was trying to tell mom I was so over the photoshoot, but she just kept snapping!
We took Cristian to Pappasitos for his 3 month birthday dinner last night. He didn't get to have any of the delicious food or margaritas, but he enjoyed sitting outside on the patio and watching the waterfall while mommy and daddy cleaned their plates. We even threw pennies into the fountain with wishes for both Cristian and Philip. It was fun. We haven't really had a whole lot of family time outside the house since Cristian was born, so this was such a treat. Carlos has taken to saying that everyday is Christmas at our house. Cristian is our daily gift that keeps on giving. We are amazed everyday as he takes in the world around him and continues to change and grow. We are so in awe of him.
Sunday, September 14, 2008
Update!
The past couple of weeks has been pretty busy. Work is starting to pick up, the fall is our busy season. Sorry for the lack of a post in awhile.
Cristian had a cold last week. We took him to the doc on Tues just to make sure it wasn't an infection. Luckily, just a cold. He has gained another pound and another inch! 14 1/2 pounds and 25 inches long. This kid is so tall...must get that from Daddy! Our doc is so great, everytime we go he teaches us something new. This time we learned to put vaseline on the end of the rubber sucker thingy before putting it in Cristian's nose. Apparently, the rubber can take some of the inner nose skin off if you use it without the vaseline! I had no idea. Poor kid, no wonder he hates that thing! Bad Mom, Bad Mom. Cristian sat on Daddy's lap for most of the appointment listening to everything the doc said. His only objection came in the form of a raised eyebrow when the discussion turned to the role of vaseline in assisting in the relief of constipation. He didn't seem too keen on that one. The raised eyebrow got a big grin and laugh from the doc. My kid, what a comedian. In the end, we are rockin' the saline nose drops and moving past the "first cold". The jury is still out on the constipation assist, I am hoping a little extra H2O in his bottle will do the job and we won't have to cross that bridge!
Oh, for those of you who have sweetly asked, my family is all safe and sound after the hurricane. Ike did very little damage to the houses of my family and my Aunt Ellen and Uncle Carl were able to fly out of Louisianna to make their Alaskan cruise! I wish I could have gone with them...I hear those Alaskan cruises are relaxing and the scenery is fantastic! Plus, I wouldn't have to squeeze my two babies in two years butt into a bathing suit! Double bonus!
BTW- Cristian LOVES football! He hangs out with Dad in the recliner and watches game after game! Here are some recent pictures with all his longhorn gear! And that outfit...a size 12 months! It's big on the sides, but lengthwise...perfect!
All smiles!!! I tried to get the raised eyebrow, but my camera is too slow!
Cristian had a cold last week. We took him to the doc on Tues just to make sure it wasn't an infection. Luckily, just a cold. He has gained another pound and another inch! 14 1/2 pounds and 25 inches long. This kid is so tall...must get that from Daddy! Our doc is so great, everytime we go he teaches us something new. This time we learned to put vaseline on the end of the rubber sucker thingy before putting it in Cristian's nose. Apparently, the rubber can take some of the inner nose skin off if you use it without the vaseline! I had no idea. Poor kid, no wonder he hates that thing! Bad Mom, Bad Mom. Cristian sat on Daddy's lap for most of the appointment listening to everything the doc said. His only objection came in the form of a raised eyebrow when the discussion turned to the role of vaseline in assisting in the relief of constipation. He didn't seem too keen on that one. The raised eyebrow got a big grin and laugh from the doc. My kid, what a comedian. In the end, we are rockin' the saline nose drops and moving past the "first cold". The jury is still out on the constipation assist, I am hoping a little extra H2O in his bottle will do the job and we won't have to cross that bridge!
Oh, for those of you who have sweetly asked, my family is all safe and sound after the hurricane. Ike did very little damage to the houses of my family and my Aunt Ellen and Uncle Carl were able to fly out of Louisianna to make their Alaskan cruise! I wish I could have gone with them...I hear those Alaskan cruises are relaxing and the scenery is fantastic! Plus, I wouldn't have to squeeze my two babies in two years butt into a bathing suit! Double bonus!
BTW- Cristian LOVES football! He hangs out with Dad in the recliner and watches game after game! Here are some recent pictures with all his longhorn gear! And that outfit...a size 12 months! It's big on the sides, but lengthwise...perfect!
All smiles!!! I tried to get the raised eyebrow, but my camera is too slow!
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